24.07.14 by Jeff

Sian Davey

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“Finding Alice” is a series of photos by Sian Davey of her daughter Alice, who was born with Downs Syndrome. From her site:

“Alice has entered a world where routine genetic screening at twelve weeks gestation is thrust towards birth prevention rather than birth preparation. Whilst we make our selection and decisions in private, the effect on society is that ninety two percent of Downs Syndrome babies are terminated at the pre-natal screening stage.

I was deeply shocked when Alice was born as an ‘imperfect’ baby. It was not what I had expected. Our first experiences in hospital did little to diffuse this. Examining Alice the paediatrician pulled back her legs, pushed her thumbs deep into her groin, and promptly announced that we should take Alice home and treat her like any other baby. But she didn’t feel like any other baby, and I was fraught with anxiety that rippled through to every aspect of my relationship with her. My anxieties penetrated my dreams. I dreamt that Alice was swaddled in a blanket and that I had forgotten all about her. I unwrapped the tight bundle that she was nestled in, to feed her, only to discover that she was covered in a white fluid – a fluid of neglect; and yet I was unable to feed her, unable to respond to her basic needs.

On reflection I saw that Alice was feeling my rejection of her and that caused me further pain. I saw that the responsibility lay with me; I had to dig deep into my own prejudices and shine a light on them. The result was that as my fear dissolved I fell in love with my daughter. We all did.

I wonder how it might be for Alice to be valued without distinction, without exception and without second glance. This project is for her, for Alice.”

More photos from this series below.


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Sian Davey’s Website

 













Jeff
Jeff Hamada is the Founder and Editor of Booooooom. He lives and works in Vancouver.



  • kara rane

    Beautifully captured… All the complexities of life – true art!

    • CatherineEHadley

      my friend’s step-mother makes $73 every hour on the computer. She has been out of a job for 7 months but last month her pay was $7220 just working on the computer for a few hours.

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  • So much love in these photos, so sincere it seems

  • Tabita Hub

    Wonderful!

  • Adorable, thanks for sharing these.

  • Chantal Suarez

    Alice’s life is so meaningful, beyond this photos, so much love is portraited…i loved this.

  • Virginia

    What exquisite photographs of your precious girl. I have had the privilege as a teacher and now a photographer to know so many Down Syndrome kiddos and I loved them every one. I love their unbridled joy and innocence and also their stubbornness! I recently was blessed to be asked to photograph two year old Chambers with her brother and sister before her heart repair surgery. We are so grateful that she did so well and was back to being hilarious and spunky in record time. Thank you for sharing your feelings with all of us here. We understand. Blessings to you and your dear family.





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